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Digeorge Syndrome when trying to have children

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My daughter was born with Tetralogy of Fallot, Pulmonary Atresia & DiGeorge Syndrome. SHe had many heart operations and full rods but in her spine for scoliosis and eye surgery for weak muscle..Many different things came with her heart/lung issues. I will be scared to get pregnant again


One of my biggest fears was having a child with DiGeorge. When my husband and I first got married, we were told that because he had it there was a 50% chance that our child would have it. We had two healthy children together, and then we got pregnant again, and it appears he has it (my oldest is from another relationship). Unless there is a parent with the syndrome, I was told the likelyhood of a child with it is 1 in 10000 (or somewhere in there).

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Digeorge Syndrome when trying to have children
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