as usual my life is a freakin rollercoaster. We may have to wait another 4 to 6 months before we go. Had the conference today and it looks like another patient will go befor Connor. She only see one patient at a time. Im devistated. I cannot live with my parents that long but dont want to be stuck in the hospital that long either. The other problem is one infection could kill my bay. Hes a survivor and a fighter, but how much can he fight. The dr was good at explaining everything though and there is a good chance of sucess so long as an infection dont kill him. This is insanity.

Amanda HurleyFlat Rock, Michigan
    :( praying for Conner and your family!
      Amanda Hurley
      to be honest, i dont know how i do it either. Im not a germaphobe like my best friend, so how did i end up with the kid with no immune system???
      About Amanda Hurley
      Current: Flat Rock, Michigan
      Birth: October 04
      On Moms.com since: Sep 20, 2013
      I am a 28 year old SAHM of four children. Mr. Connor is my son. I am looking for some additional help for a permanent grave marker. If you would like to help with expenses or would like to send a card, please inbox me for an address and details. Thank you