tips for dealing with critically ill and hospitalized children

not a moms expertise yet, but it should be. Im going to start with tips i learned from Connor. Feel free to chime in whether you have been here or not.
1. Utilize the social worker. They are a huge help from insurance to finances to transportaion and lodging. They are great listeners and can refer you to programs you may not know about. Ours has been a huge help trying to coordinate everything about North Carolina.
2. If your child is in the hospital, get involved. I have bonded better with Connor since i have started helping the nurses with his care.
3. Dont be afraid to ask questions. The nurses and doctors should make you feel part of the care process. If not, request different ones.
4. If you have other kids at home, make sure you dont neglet them. Someone may be taking care of them, but they still need mommy. If i have to go to the store, i take one of my healthy kids and make it special. Make sure they feel loved.
5. If you are married, involve your spouse. Tell them how you are feeling. Dont neglet them. Make a date night for them.
Lastly, dont neglect yourself. Make sure you are eating and sleeping and staying hydrated. Take breaks frequently. Dont be afraid to ask for help if you need it. It doesnt make you a bad mom, it makes you human. Hope this helps someone.

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Amanda HurleyFlat Rock, Michigan
    02/12/14
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    02/12/14
    Amanda Hurley
    No, whats that??
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    02/12/14
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    02/12/14
    Amanda Hurley
    Awesome. I wish i had a computer. Ill remember that though.
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      02/12/14
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      02/12/14
      Amanda Hurley
      Thank you. Any pointers for pumping?? I have gotten a few suggestions and lactaction came in and showed me how to hand express after pumping (ow) but im really trying to boost my supply.
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        02/13/14
        Amanda Hurley
        thanks Meg. I am. I have you guys for emotional and moral support, social workers helping with finances, my parents are helping with the kids and my friends and family are helping with transportaion.
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          02/13/14
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          02/13/14
          Amanda Hurley
          Thats a really good idea. Today i am happy that he is starting to hit his developmental milestones. I layed him on his bell after a puking fit so i could get a diaper and he picked his head up and smiled at the nurse. Then he puked again.
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          About Amanda Hurley
          Current: Flat Rock, Michigan
          Birth: October 04
          On Moms.com since: Sep 20, 2013
          I am a 28 year old SAHM of four children. Mr. Connor is my son. I am looking for some additional help for a permanent grave marker. If you would like to help with expenses or would like to send a card, please inbox me for an address and details. Thank you