update on earlier post

Recently I posted that I was becoming concerned about my 6 mo son who would not use his right arm/hand/fingers and that my pediatrician blew off my questions at his last doctor appt. Well today we took him back to the doctor and saw the PA (they whole reason we stay with this dr) and she is now sending us to Children's Hospital to see a neurologist. The (prick) pediatrician was called in to confer and they told us they believe our son as brachial plexus palsy. So it has been an emotional afternoon for me. I have read up on it and they degree of severity can be mild to disabling. Since our son does use it to a very minor extent I do not see it being disabling but I also had a friend who had a injury exactly like this and ended up having to have the affect limb amputated. What really upsets me is most of the facts on this state that it generally happens in child birth and needs to be detected between 3-6 mo for optimal recovery. So I question if something happened in my delivery (a c-section) which was quick and 3 wks early because they figured out after my son was born he had had a bowel movement (meconeium) and it was pretty severe which lead to him being admitted to NICU for a 7 day heavy antibiotic regime. And then secondly, I tried discussing this with the (prick) ped dr and he blew me off. Right now I just want to focus on finding out what is specifically wrong with my son, the degree of it, and working on getting him better. However, I would like to know if something happened in the delivery that was not told to me.

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4StephaniePoteau, Oklahoma
    02/21/14
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    02/21/14
    4Stephanie
    Yes I had thought about this and will think it over and decide once we have more answers. I would hate to find out that something was kept that could cause harm to my baby just to cover themselves. So for now I know I have to think positive. Thank you for your prayers
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      02/21/14
      Tessa
      Im so sorry your going through this. You and your son will be in my prayers.
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        02/21/14
        4Katie
        I am sorry to hear you didn't get good news. I am glad that you are going to see a specialist. Try not to worry about possible outcomes until you talk to the specialist. The specialist should be honest with you about treatment and prognosis. I suggest requesting your medical records and his medical records before hand and bringing them to the specialist with you. Good luck and big hugs to you!
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          02/21/14
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          02/21/14
          4Stephanie
          Thank you for the link. I will definitely look at it. I have been researching children's hospitals that specialize specifically in this.
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            02/21/14
            8Theresa Gould
            Sorry you received this news. So glad your PA was proactive! We loved our nurse practitioner when we saw a pediatrician.
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              02/21/14
              You can get a copy of the reports from your birth. Things are documented pretty accurately and see there if something happened that was just a thing to them not knowing it would actually cause something.

              Unfortunately you may not find out the reason and if you're like me who reaaallkyyy likes to know a cause of everything then that may be tough.

              I hate prick doctors of all kinds and u should tell him to his face that you feel like he's blowing your concerns off and ask him or tell him to have some freaking compassion for a mom whose sons hand isn't "working right"".. Sorry about that but I feel your irritation and concern.

              Regardless of what (if) something happened to make this an issue.. Here you are and that's so scary to deal with, but you are doing everything u can and will continue to do what you should do for your baby.

              I can tell from your post that you will get answers and get the attention and rehab your son needs to help you guys out.

              Keep us posted!! If like to know if you find something and how this is treated.

              Stay strong and wise. :)
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              02/21/14
              4Stephanie
              I do worry about that if something went wrong in delivery it will not be noted in the records. I kept telling my OB that there was something wrong I could just feel it the last 2 weeks before I delivered 3 weeks early. The peds dr told us that our son had his bowel movement and had been exhaling it for quite some time to be the severity that it was. When I saw my OB dr in the hallway the following day after my delivery I told him that he had been admitted into NICU and we still had not been able to hold him, his response was that some babies just were not ready to be delivered at 37 weeks. I was so mad I told him matter of factly that it was a VERY GOOD thing that he was delivered at 37 weeks according to the peditrician or it could have been serious enough that not only could I have lost my baby but my life as well. I cannot believe the arrogance of doctors now days.......and we are just supposed to listen and do what they say. I knew my body and it was telling me that there was something wrong! My bp stayed at 150-160/100 the last 2 weeks and I was sent to L&D 3 times until my 4th time they could not stop my contractions and had to deliver. The Lord was definitely watching over both of us!!!
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              About Stephanie
              Born: Poteau, Oklahoma
              Current: Poteau, Oklahoma
              Birth: July 21
              On Moms.com since: Feb 1, 2014
              Mom to 4 awesome boys...twins 17, 8 yr old, and 6 mo old (empty nest started to hit me). Interning and will graduate with counseling degree in May. Also starting my own home based business so busy busy busy and loving it!
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