devistated

are you freakin kidding me? my insurance company does not want to keep my son in the hospital. they want him discharged. they are no longer paying for his care. connors oxygen levels keep dropping still, hes still needed a lot of suction, and theres the minor problem HE HAS NO IMMUNE SYSTEM. im a nervous wreck. someone is appealing the decision on my behalf, but i may have to take a crash course over the weekend on how to care for him.

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Amanda HurleyFlat Rock, Michigan
    03/06/14
    4Katie
    What kind of medical equipment are they sending you home with?
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    03/06/14
    Amanda Hurley
    I know oxygen and suctioning for sure. Other than that nothing that I can think of.
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    03/06/14
    4Katie
    Are they sending a monitor to keep an eye on oxygen saturations?
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    03/06/14
    Amanda Hurley
    i dont know at this poit, but i assume so.
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      03/06/14
      Comment deleted
      03/07/14
      Amanda Hurley
      Thats part of the problem. Right now, people are able to see him because of the hepa filters in the hospital. When he comes home, noone will be allowed in our house. We will not be able to go anywhere. Donald will go to work, and Jasmine will go to school, but that is it. There are a lot of precautions I will have to take. My social life will be no more.
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        03/06/14
        Comment deleted
        03/06/14
        Amanda Hurley
        they are. His immunologist is fighting like crazy.
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          03/06/14
          4Katie
          I personally understand how scary it is to bring home a medical fragile child. It is scary, very scary. It is very hard to learn new medical care and requirements. Sometimes it is better for your child to be at home. The hospital is full of germs and generally your home will have less germs. At home their will be less contact with other people also reducing the germs. Ask about them sending out a home nurse to help you get settled in at home and to learn all the new medical requirements. Make sure you have multiple numbers of medical resources you can call 24/7 for help and advice. Make sure you get plenty of directions in writing. Have the hospital teach you his care multiple times, practice while he is at the hospital, make sure you feel comfortable. You will make mistakes and that is ok, we are all human and we all make mistakes. I had to take my daughter home with a large amount of medical equipment and it was not easy. Please reach out if you need any support!
          3
          03/06/14
          Amanda Hurley
          the room he is in at the hospital has hepa filters. hes in mor isolation here. i live in a two bedroom apartment with my husband and four children. he is at risk because of the other three siblings.
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            03/06/14
            8Theresa Gould
            Another reason I don't like insurance companies. I'd like to know what they do deem medically necessary in a case like Connor's. Hoping and praying it all works out for you and your doctors advocate big time for Connor's care.
            1
            About Amanda Hurley
            Current: Flat Rock, Michigan
            Birth: October 04
            On Moms.com since: Sep 20, 2013
            I am a 28 year old SAHM of four children. Mr. Connor is my son. I am looking for some additional help for a permanent grave marker. If you would like to help with expenses or would like to send a card, please inbox me for an address and details. Thank you