feeling like a failure
I am having such a hard time with my health. Before I got pregnant I was almost in remission. I have a bladder disease called interstitial cystitis. Its really painful and I am tired all the time. I feel so bad for her bc I feel like I don't do enough with her.:( I don't drive so i am dependent on help bc of the fatigue i choose not to drive. Anyone with chronic fatigue relate to this how do you cope?
I can't imagine what you go through. In fact just earlier today (I haven't slept much in 3 nights .. Since our earthquake And kids up a lot scared).. I was telling a friend how fried I was and the thought of doing dishes or getting the laundry or helping w homework was exhausting. And I said, "can u imagine feeling like this all the time?"
One of our friends has fibromyalgia and has major fatigue. It's heartbreaking.
She doesn't "do" much either with her kids. But they've learned to bring things to her. Games, cards, books etc and she can rally just enough to play them or read to them.
Try to find anything you CAN do and make it special.
Kids are really understanding if you are honest in your health. They're forgiving too I think.
I know your guilt is huge.
She takes a medicine for fatigue. Provigil or something. It's for narcolepsy or chronic fatigue and she said its life changing. Keeps her alert. Not energetic but aware.
You take anything? Before pregnancy? During? Talk to ur doctor. There's got to be something u can take to help.