This poor baby is going through the same thing as Connor.

http://abcnews.go.com/GMA/video/mom-fights-medica…

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Amanda HurleyFlat Rock, Michigan
    04/04/14
    Comment deleted
    04/04/14
    Amanda Hurley
    And she was denied. I at least have some of an approval.
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      04/04/14
      Beth
      Heartbreaking!! Does Connor need a thymus transplant as well?
      1
      04/04/14
      Amanda Hurley
      Yes, that is what we are waiting on. He still has RSV, and will not get rid of it until his immune system can fight it. That is why hes on oxygen and is having so many respitory issues.
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        04/04/14
        Comment deleted
        04/04/14
        Amanda Hurley
        i am happy though, to have found someone else. connor's case is so rare.
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        About Amanda Hurley
        Current: Flat Rock, Michigan
        Birth: October 04
        On Moms.com since: Sep 20, 2013
        I am a 28 year old SAHM of four children. Mr. Connor is my son. I am looking for some additional help for a permanent grave marker. If you would like to help with expenses or would like to send a card, please inbox me for an address and details. Thank you