Ok, Full update on Baby

So, as everyone knows, I had my appointments out at the hospital where we will be delivering our beautiful baby boy. I left the house yesterday at 6 am, and did not get home until 8 pm. It was a LONG day, but I am glad. My first appointment was with the high risk maternal fetal medical group. We had an ultrasound, where Mr. was not being very cooperative. Physically, other than his heart, he is not showing any of the normal physical signs of DiGeorge's. He has both kidneys, and there appears to be no clubbing of his feet. He gave us a good picture of his ear and hair, but would not let us look at his face (I will post in a minute). We then met with the genetic counselor and we were told that even though Grahm and Makenzie show no signs of DiGeorge's now, we should still have them tested. After that, I met with the OB staff for the high risk group. I LOVE EM. They were very nice and supportive. After lunch, we had a fetal echocardiogram, where they confirmed what was suspected. He does have the interrupted aortic arch, a fairly large hole in his heart, and one of his valves seems small. We then got to talk to the cardiologist, who put my mind at ease. Because all of my labors were at least 5 hours from the time my water broke, they feel no need for early induction. We should be able to make the 45 minute trip to the hospital with no problems. The baby is growing well. My only bummer is that with DiGeorge, the will let you pump, but generally don't attempt actual breastfeeding until after his surgery, which will take place within the first week of his life. He will be put on IV medication until then, to keep blood flow to the lower portion of his body. After his surgery, he will be in the hospital for at least a week. We were told the only thing he may come home with is a feeding tube. No monitors will be needed at home after his surgery. I am hoping that he does well with breast milk and I can breastfeed him. That was always my biggest things with my children. It creates a bond like no other. I am glad that I will not have to have a C Section, except in the normal cases of birth. I am also thankful that I will be able to go into labor naturally. Thank you all for all your thoughts and prayers. It was a good day.​

03
Amanda HurleyFlat Rock, Michigan
Moms Expertise
    11/22/13
    5sarah
    I'm glad you like the team!! Does not showing any other signs mean it could be something else that not as bad?
    2
    11/22/13
    Amanda Hurley
    No, it just means physically right now the only problem is his heart. The doctors did say that he most definitely will test positive for DiGeorge. We will have to watch his immune function and development for delays and hindrances.
    0
    11/22/13
    5sarah
    ok well thats sad but at least everything else is looking good right now.
    1
      11/22/13
      8Theresa Gould
      So glad it went so well. It sounds like a very good day. Will be praying baby will be able to nurse, I know how important that is when income is limited and breastmilk is free.
      1
      About Amanda Hurley
      Current: Flat Rock, Michigan
      Birth: October 04
      On Moms.com since: Sep 20, 2013
      I am a 28 year old SAHM of four children. Mr. Connor is my son. I am looking for some additional help for a permanent grave marker. If you would like to help with expenses or would like to send a card, please inbox me for an address and details. Thank you