Hi. Just wondering if anyone has a little one with Williams syndrome? Our little Rylee was diagnosed with it about a month ago.

our little rylee

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4NicoleReading, Pennsylvania
    12/20/13
    Comment deleted
    12/20/13
    4Nicole
    Hi Linda. Williams syndrome is a genetic disorder that is very rare. Most people have never heard of it! There is no preventing it as it occurs randomly.
    It generally affects any or all of the major organ systems as well as a person's size, hearing and vision. People with WS generally are subject to learning disabilities and delays in milestones like walking and speech. On the positive side, they are typically very happy, friendly, empathetic and outgoing. If you or anyone has questions, I am happy to answer them to my best ability. Thanks for inquiring.
    2
      12/20/13
      Hi, I don't have a child with Williams but there was a girl in my school growing up who had it. She was super sweet and outgoing but her parents were always worried that she would get teased for being different. Every year in elementary school they would come talk to her class about what Williams Syndrome was and It was really great. I always felt like it made the other kids wanna help her and look out for her. She had some learning disabilities so I remember she left the main classroom for extra help sometimes. Other then that I remember her being on the playground and doing some group projects with us. She always seemed really happy.

      I can't imagine what you're going through but I hope it helps to know that she can still be a happy and still do all the things other kids do. I'm not in the same situation as you, but I'd be happy to listen if you ever just want to talk
      1
      12/20/13
      4Nicole
      thanks for the feedback...it's greatly appreciated! We have learned a lot about it but we have no idea what the future holds for her with the wide range of health concerns that can arise. We are optimistic and do realize worse things can happen. So far, she only has some mild cardiac issues. I will keep you posted on rylee's progress. Thanks again for your encouraging words.
      1
        12/20/13
        4Nicole
        thank you. I'm on Facebook under Nicole Myers if you want to see my cuties ( :
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        About Nicole
        Current: Reading, Pennsylvania
        Birth: November 14
        On Moms.com since: Dec 16, 2013
        Hi. My name is Nicole. My honey is Matt. Between the two of us, we have 7 kids. We just had our first together in September. We also have a pit bull, a rabbit, 2 lovebirds and 3 lizards. I am a stay at home mom. I was previously a Toddler teacher.