the pre butterflies have set in for my oldest daugthers appointment on the 9th it came up crazy fast ..been six months since our last visit we are hoping to narrow down with this appointment to comfrim if she has MarFans symdrome
That would be nerve wrecking, hope you get the answers your looking for.
I bet just knowing and then having that information to grow on and learn about will be life changing. Sending good thoughts!!
it runs on her dad's side heavily there are 6 known people on that side that were told they have it but could be a larger number of people before Marfan was known about .... Grandpa and Uncle have it ...her dad shows some signs but we were told his is passive but he can still pass it on
Hugs** and prayers
Moms also like
About Elizabeth Jorschumb
Born: Georgetown, Texas
Current: Wheaton, Minnesota
Birth: November 12
On Moms.com since: Nov 27, 2013
I have two daughters.. Miley and Ava they are the most amazing things ever to happen besides falling in love with there dad